Mainly about my experience of living with the illness Myalgic Encephalomyelitis (ME), but not always. Somewhere along the way the puffins and the penguins may become clear.

What I write here is only about my own experience. ME affects everyone differently, different symptoms, different triggers and different levels of severity. We each handle it and the challenges it brings in our own individual ways. I want to raise awareness for all ME sufferers, but I am not speaking for all of us, only me.

Some ME Resources…

Invest In ME

Action For ME

ME Association


Phoenix Rising

Jennifer Brea’s TED talk – What happens when you have a disease doctors can’t diagnose

Unrest – A personal film about the hidden world of ME

Stop Graded Exercise Therapy 

Let’s Do It For ME